We’ve compiled a list of resources to help people living with Parkinson’s and their caregivers get the services and support they need. If you have suggestions for other items to include – including Parkinson’s organizations, web resources and books – contact us to let us know!
Resources For Patient Services And Support
APDA is a national organization with local chapters, support groups and informational and referral centers to help promote a better quality of life for the Parkinson’s community.
The Foundation’s Every Victory Counts program includes a manual with information, tools and inspiration to help people with Parkinson’s live well today.
The Melvin Weinstein Parkinson’s Foundation purchases equipment and supplies that Parkinson’s patients need to sustain a safe and healthy environment and preserve their self-esteem and dignity.
The MJFF website has information to support people living with Parkinson’s, including resources to help you understand the latest in Parkinson’s science and research toward a cure.
A National Parkinson Foundation Center of Excellence based in Arizona, MAPC provides free online learning courses available to anyone regardless of where they receive medical care.
The NPF website has information and discussion forums, in both English and Spanish, for people living with Parkinson’s. In partnership with APDA, the organization also hosts a series of Young Onset Parkinson Conferences.
The Parkinson Center of Oregon combines the latest innovations in care, education and research to serve people, families and healthcare providers dealing with Parkinson’s disease.
PAN is a leading advocacy organization for people living with Parkinson’s. The website includes ways for the Parkinson’s community to take action on important issues.
The PDF website has information to support people living with Parkinson’s, including resources to help navigate financial, legal and employment issues. The website also has information for a national helpline staffed by a team of information specialists.
When Sheryl and Jean were diagnosed with young onset Parkinson’s, they combined their talents in writing and design to produce information to help people live well with PD.
Wemove.org is the hub of movement disorders activities on the web and includes an international guide to movement disorder patient advocacy groups and foundations.
Resources For Caregiver Services And Support
CARE’s ListServ is dedicated to Parkinson’s caregivers. The ListServ is a place for caregivers to safely express feelings, get practical support and share experiences.
Caring has a discussion forum for Parkinson’s caregivers to ask questions of others and information to help them manage medications and treatments.
NFCA is an advocacy organization for family caregivers. In addition to resources for the caregiving community, the NFCA website also includes ways to take action on issues that affect caregivers.
The NPF website has information and videos to help support caregivers. The site also has a blog where caregivers can share stories and advice.
Caregiving and family support information on the PDF website includes tips for talking to kids about Parkinson’s.
Well Spouse Association provides peer to peer support and education to help individuals who are caring for a chronically ill spouse or partner.